Precision Medicine Forum and Precision Oncology Forum - Virtual Panel Series aims to educate and offer perspectives to the clinicians, researchers, industry and patient groups, and those within their respective institutions who are tasked with building the necessary systems and solutions to harness the full potential of precision medicine.

We convene a group of experts from a range of disciplines within precision medicine, and via a moderated discussion, allow unique insights in a relaxed, interactive environment. Our platform allows for audience Q&A, polls, and open discussion amongst the panellists to create a fully immersive experience. Our attendee research confirms that it is difficult to retain interest while sitting at a laptop for hours on end, so our bi-weekly 60 min. sessions help to make each session more interactive, with greater flexibility to fit into attendees’ busy schedules and ensure increased attendee retention for the full session.

During the event on January 13th, our panellist's will be discussing these topics: 

• Determining the extent to which current GDPR and other data regulations are sufficient to cover the use of patient data: 
  • how does specific provision for scientific research within General Data Protection Regulation (GDPR) differ across European countries
  • what frameworks, principles and norms have so far been developed to ensure an ethical approach to data sharing in health research?
  • what additional data governance requirements might be needed?
• Addressing ethical concerns with regards to patient privacy and confidentiality and ensuring any potential risks are transparent to all concerned - to what extent is anonymisation whilst allowing effective use of patient data achievable?
• Managing the balance between patient privacy rights and the benefits of data-sharing
  • understanding patients’ expectations of research and the societal benefits and value from it 
  • how do we generate and maintain patient trust with regards to their personal information?
• Exploring the current and potential uses of AI and digital technologies for healthcare data and the implications of this:
  • legal and regulatory compliance
  • patient trust & engagement

Click here to register for this event.